Through the vision and dedication of a small group of concerned parents FARA Ireland was established in 2011. Families have been working to raise money for research into treatments for Friedreich’s Ataxia for many years. We believe that working together we can raise greater awareness and significantly improve the funds raised for research.
The FARA registry currently holds the demographic and clinical information on more than 2,000 Friedreich’s Ataxia patients from across the US and internationally. The registry was created to serve patient, physician, and research communities.
To date FARA Ireland has contributed over €165,000 to research on your behalf.
A review of 2016 - the conferences attended, the fundraising activities of our supporters, new friends and old acquaintances.