Health Services Executive (HSE) Review of services for those with Progressive Disability 0-18 years. Monday 12 December 2011 Naas Meetings were organised by the HSE in the Kildare and West Wicklow area for parents with children with progressing disabilities. Over the last few years it had become apparent that disability services delivered by the HSE […]Continue Reading... Comments Off on HSE meeting on the Progressing Disability Services
FARA Ireland is delighted with the level of interest shown by parents in the recent survey on the needs of children. Parents of 11 Friedreich’s Ataxia (FA) sufferers completed the survey, with the children ranging in age from 13-22 years, with a mean age of 15.5 years. Their conditions ranged from being well (minimal symptoms) […]Continue Reading... Comments Off on Results of the Friedreich’s Ataxia Physical Therapy Survey
Over the past months a number of parents have approached us with a view to finding out about services that should be available to families who have children with Freidreich’s Ataxia. Some children receive regular Physiotherapy and Hydrotherapy, some get nothing at all. With a view to finding out what families are receiving we have […]Continue Reading... Comments Off on Physical Therapy Survey
With only a couple of packs remaining, our Christmas cards have been selling so fast that we have placed a second order with our printer. These new packs should be available around the 25th November. We are delighted with the response this year. Thank you for your support!Continue Reading... Comments Off on Christmas Cards 2011
We are so excited about our fabulous new cards for Christmas 2011. We will be updating our shop over the coming days with pictures and details of prices. All proceeds will go towards finding treatments and a cure for Friedreich’s Ataxia. If you can, please help us to find a cure!Continue Reading... Comments Off on Christmas Cards 2011
Today FA Mums from Cork, Limerick, Kilkenny, Wexford, Down, Wicklow and Dublin attended an informal lunch at the D4 Berkeley Hotel in Dublin. We had the opportunity to chat, to get to know each other and to share our ideas about and experience of FA. It was great! Between us we have a wealth of […]Continue Reading... Comments Off on FA Mums’ Lunch – A Great Success!
Are you a Mum with a child who has FA? Would you like to meet up with other Mums, for lunch and a chat? We have organised a date and place. We will meet on June 18th at the D4 Berkeley Hotle on Landsdowne Road. If you would like to join us then drop us […]Continue Reading... Comments Off on FA Mums Lunch 2011
Welcome to the FARA Ireland website. With your help we hope to become the driving force behind raising funds for research into Friedreich’s Ataxia.Continue Reading... Comments Off on FARA Ireland