Over the past months a number of parents have approached us with a view to finding out about services that should be available to families who have children with Freidreich’s Ataxia.
Some children receive regular Physiotherapy and Hydrotherapy, some get nothing at all. With a view to finding out what families are receiving we have put together a survey. If you have a child with Friedreich’s Ataxia and could spare a couple of minutes, we would appreciate it if you would fill in our survey.
Assuming that children with Friedreich’s Ataxia need more services, we hope to bring the results of the survey to the attention of the Ministers for Health and Disability, Equality and Mental Health.
Please click the link here and then submit.