The community in West Wicklow have all been inspired by the paralympian champion, Helen Kearney, on her triple medal win in the London paralympics. So inspired were they that Rathsallagh Golf Club chef Mark Fuston and Dunlavin Bacon Company Mark Walsh ran a golf classic on 26th October 2012. It was cold day but the […]Continue Reading... No Comments.
A table quiz, organised by the Leinster Shorthorn Breeders Association at Rathsallagh Golf Club raised €1600 for Friedreich’s Ataxia research. We are very grateful to all involved. Pictured in the photo are Elaine Stanley, James Whelan, Ivan Stanley, Niamh Darker, Dr. Mary Kearney, Paul Darker and Paralympian Medalist Helen KearneyContinue Reading... No Comments.
There will be a fundraising night on Decemeber 8th in the Lord Bagenal Inn in Leighlinbridge, Carlow. With music from Four Penny Rock and a raffle, it promises to be a fun night. Tickets cost €10. For more information, click here.Continue Reading... No Comments.
Helen Kearney, who returned from the 2012 Paralympics with a Silver and two Bronze medals would like to acknowledge and thank all of those people who have sent cards, flowers and gifts since her return from London. Due to the overwhelming volume of gifts received, Helen has nominated Friedreich’s Ataxia Research Alliance Ireland (www.faraireland.ie) as […]Continue Reading... No Comments.
A big thank you to all who contributed to the Flora Ladies Mini Marathon held in June 2012 in aid of Friedreich’s Ataxia research. Marie Doran and her neighbour Eileen Bartley Narragmore jogged the marathon and raised €1,900. Geraldine Bracken had planned to jog but due to a minor injury, she was unable to take […]Continue Reading... No Comments.
Repligen Corp. (NASDAQ:RGEN) in Waltham has enrolled (March 2012) its first patient in a Phase 1 clinical trial of RG2833 in adult patients with Friedreich’s ataxia (FA), see http://www.masshightech.com/stories/2012/03/12/daily57-Repligen-begins-clinical-trial-of-drug-for-Friedreichs-ataxia.html Repligen also reported it’s year-end financial results for 2011, according to two announcements this week. The RG2833 drug candidate is an oral class 1 histone deacetylase […]Continue Reading... Comments Off on HDACi clinical trial starts in Turin
All Friedreich’s ataxia patients hope that they will not be forgotten in the these recessionary times. The HSE for their part recently compiled a report to develop a strategy and policy for those requiring neuro-rehabilitation services. You will have seen during winter, FARA Ireland asked parents of children who were under 18years about the physical […]Continue Reading... Comments Off on HSE services report
Over the last month information has been coming through about Phase 1 clinical trails in HDAC inhibitors for Friedreich’s Ataxia. In this Italian newspaper, it talks about the imminent start of a six months duration trial, only for adults, they do not say which drug, but as they say that “awakens the dormant gene”, I […]Continue Reading... Comments Off on The latest on HDACi
One of our founding members Dr Mary Kearney recently travelled to Strasbourg to attend the FARA Scientific Symposium on Friedreich’s Ataxia. She gives us an outline of the conference below. Strasbourg Thursday – May 5th 2011 I went to this conference on the understanding that it was a scientific conference. I did not expect a […]Continue Reading... Comments Off on FA Conference Strasbourg May 2011