Yearly Archives: 2012

  • Rathsallagh Golf Classic – a great success

    Posted on 9th December 2012 by Caroline in Fundraising, News.

    The community in West Wicklow have all been inspired by the paralympian champion, Helen Kearney, on her triple medal win in the London paralympics. So inspired were they that Rathsallagh Golf Club chef Mark Fuston and Dunlavin Bacon Company Mark Walsh ran a golf classic on 26th October 2012. It was cold day but the […]

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  • Leinster Shorthorn Breeders Association raises funds for FARA Ireland

    Posted on 2nd December 2012 by Caroline in News.

    A table quiz, organised by the Leinster Shorthorn Breeders Association at Rathsallagh Golf Club raised €1600 for Friedreich’s Ataxia research. We are very grateful to all involved. Pictured in the photo are Elaine Stanley, James Whelan, Ivan Stanley, Niamh Darker, Dr. Mary Kearney, Paul Darker and Paralympian Medalist Helen Kearney

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  • Fundraising to find treatments and a cure for FA

    Posted on 12th November 2012 by Caroline in Events, Fundraising, News.

    There will be a fundraising night on Decemeber 8th in the Lord Bagenal Inn in Leighlinbridge, Carlow. With music from Four Penny Rock and a raffle, it promises to be a fun night. Tickets cost €10. For more information, click here.

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  • Thank You from Helen Kearney

    Posted on 25th September 2012 by Caroline in News.

    Helen Kearney, who returned from the  2012 Paralympics with a Silver and two Bronze medals would like to acknowledge and thank all of those people who have sent cards, flowers and gifts  since her return from London. Due to the overwhelming volume of gifts received, Helen has nominated Friedreich’s Ataxia Research Alliance Ireland (www.faraireland.ie) as […]

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  • Thanks to our Mini Marathon Participants & Supporters

    Posted on 24th September 2012 by Caroline in Events, Ladies Mini Marathon.

    A big thank you to all who contributed to the Flora Ladies Mini Marathon held in June 2012 in aid of Friedreich’s Ataxia research. Marie Doran and her neighbour Eileen Bartley Narragmore jogged the marathon and raised €1,900. Geraldine Bracken had planned to jog but due to a minor injury, she was unable to take […]

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  • HDACi clinical trial starts in Turin

    Posted on 9th April 2012 by Caroline in Uncategorized.

    Repligen Corp. (NASDAQ:RGEN) in Waltham has enrolled (March 2012) its first patient in a Phase 1 clinical trial of RG2833 in adult patients with Friedreich’s ataxia (FA), see http://www.masshightech.com/stories/2012/03/12/daily57-Repligen-begins-clinical-trial-of-drug-for-Friedreichs-ataxia.html Repligen also reported it’s year-end financial results for 2011, according to two announcements this week. The RG2833 drug candidate is an oral class 1 histone deacetylase […]

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  • HSE services report

    Posted on 15th February 2012 by Caroline in Hydrotherapy, Occupational Therapy, Physiotherapy.

    All Friedreich’s ataxia patients hope that they will not be forgotten in the these recessionary times. The HSE for their part recently compiled a report to develop a strategy and policy for those requiring neuro-rehabilitation services. You will have seen during winter, FARA Ireland asked parents of children who were under 18years about the physical […]

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  • The latest on HDACi

    Posted on 10th January 2012 by Caroline in Clinical Trials.

    Over the last month information has been coming through about Phase 1 clinical trails in HDAC inhibitors for Friedreich’s Ataxia. In this Italian newspaper, it talks about the imminent start of a six months duration trial, only for adults, they do not say which drug, but as they say that “awakens the dormant gene”, I […]

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  • FA Conference Strasbourg May 2011

    Posted on 2nd January 2012 by Caroline in Events.

    One of our founding members Dr Mary Kearney recently travelled to Strasbourg to attend the FARA Scientific Symposium on Friedreich’s Ataxia. She gives us an outline of the conference below. Strasbourg Thursday – May 5th 2011 I went to this conference on the understanding that it was a scientific conference. I did not expect a […]

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