All Friedreich’s ataxia patients hope that they will not be forgotten in the these recessionary times. The HSE for their part recently compiled a report to develop a strategy and policy for those requiring neuro-rehabilitation services. You will have seen during winter, FARA Ireland asked parents of children who were under 18years about the physical services they were receiving from the HSE.
This report focused on five of the most common neurological illnesses which does not include Friedreich’s Ataxia. It is laid out in clear terms. It does report that services have been developed in an “ad-hoc-manner” and the absence of timely support services can lead to increased hospital admissions and delayed discharges. Below is the link to the report. I would encourage you all to read the report.